Poll: What do YOU Want from OxVox?

What would you like to see more of here at OxVox? I’ll be happy to accommodate as many requests as I can, but I can only help you if you help me!

What would you like to see on OxVox.com?

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6 Responses to Poll: What do YOU Want from OxVox?

  1. Bernadette Kutcher says:

    Recipe section!

    • admin says:

      Hi Bernadette!

      I hear you loud and clear. While I would love to host a huge recipe section, I have to admit I’m not much of a cook right now. Since oxalates aren’t my main problem, I can currently only eat about 5 foods, with zero seasonings. Until my doc and I can get me straightened out enough to be able to eat a more varied diet, I likely won’t be doing much experimenting in the kitchen! In the meantime, I highly recommend joining the Trying Low Oxalates Yahoo Group, which has a large recipe section, as well as folks sharing new food combo discoveries every week!

      Hope this helps,
      Michelle

  2. Paul Thompto says:

    I am most interested in news on the availability is Oxlabacter formagenes. As that seems to be the best way to get my symptoms under controls. My symptoms are burning painful joints. No stones that I am aware of.

    • admin says:

      Hi Paul,

      As of this writing, OxThera (the company trying to bring Oxalobacter formigenes to market as a pharmaceutical probiotic) is still in clinical trials with their probiotic product. While there are other companies online which purport to distribute O. formigenes, at least one person on the Trying Low Oxalates Yahoo Group who was taking them has reported that her stool tests (via the American Gut Project) reported no O. formigenes. So right now the jury is still completely out as to whether a. O. formigenes is a viable treatment for hyperoxaluria (or any other oxalate-related condition) and b. if it’s even possible to get it to “take” in the gut via probiotics.

      Hope this helps,
      Michelle

  3. Carolyn says:

    In the Yahoo Oxalate Group, the moderator talks about Oxalate Conferences. I never knew there was such a thing. Would you have any idea when and where any of them are?

    Thanks for any info on this!

    Carolyn

    P.S. Thank YOU so much, Michelle, for posting this site!

    • Michelle Fields says:

      Hi Carolyn,

      I’m pretty sure most of them are in the past at this point. For example, I can find a reference on Susan’s site to the FASEB Autism Oxalate conference, but when I check the FASEB site, I can’t find any reference to such a conference, either in the past or upcoming.

      That said, I know Susan tries to attend as many RELATED conferences and symposia as she can, to network with researchers who are (or should be) involved in the field of oxalate research. For example, autism- and kidney-related conferences likely have many such opportunities. And there may be conferences related to other diseases (such as Primary Hyperoxaluria) which would be a good fit, though I’m not aware of them.

      If there is enough interest, I would be happy to put up a page on my site where people can post such events, or even just informal get-togethers.

      -Michelle

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